Luke’s Update: Light shines brightest in the darkest night

In order for the light to shine so brightly, the darkness must be present.

– Francis Bacon

It has been one month since Luke’s surgery. Here is an update on his progress:

The day of the surgery and the almost 2 weeks he spent in hospital afterward were nothing short of scary and traumatic. My parents were able to prepare Luke for getting to the hospital but were unable to explain that he would not be back home that evening since it is difficult for Luke to process too far into the future. Every day was heartbreaking as Luke would sob in an attempt to cope with pain, confusion, and home sickness. My parents would take shifts so that he was never alone, which meant they too became isolated and weary.

With each passing day, Luke got stronger and stronger, both physically and emotionally, until the day he was finally discharged home. The hospital decided that Luke was not compliant enough to be admitted into a long-term rehab facility and so sent him home with weekly physio and nursing care. This turned out to be a great blessing, since being back in his own environment where friends can visit has continued to inspire him to work hard each and every day towards recovery and my parents can once again work together as a team. I receive texts, pictures and pLuke at homehone calls about his daily progress, and my heart aches as I wish I could hold Luke when he cries and be able to cheer him on as he does laps around the house with his walker. My mom and dad, true heroes in their own right, have pulled him through by being his coaches, care aids, and ever shining light.

Family is the greatest gift, one that can so easily be taken for granted. Without family, which includes an incredible community of friends, Luke’s journey to recovery would have been a treacherous one. Your thoughts, prayers, and support over the past month have definitely proven the incredible power of community. Being non-verbal in our ever-stretched health care system is most often a sentence of being forgotten. Let us not forget those without a voice, for if we take the time to listen we will see that they have so much to teach us beyond what words can say. Please share this story as a dedication to all those with disabilities who need advocacy and in reverence to all the selfless parents and caregivers who truly are the definition of unconditional love.

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